Books / Wellcome Images

Books / Wellcome Images

Right after my stroke, the health care bureaucracy was exhausting. You have to stay on top of it, or more letters will arrive. I don’t know how sick patients with no family support handle this bureaucracy. Now imagine having cognitive damage. One speech therapist I know, who makes house calls, says bills just pile up in some of the homes she visits.

Do you have bureaucracy stories to tell?

4 Responses to “Bureaucracy”

  1. Brian writes:

    i do, I was in a serious car accident at 18. There were roughly $630k in hospital bills. A splenectomy is a very expensive procedure. So many things went through auto insurance first, then health insurance. It was exhausting for my parents.

  2. Emma writes:

    I’m lucky in that I live in Canada and had 4 brain surgeries and 19 months in 3 different hospitals and it didn’t cost me a dime. I fully think the patient needs a strong advocate to navigate the complicated system though. I’m very lucky my parents were uber involved, especially after my useless husband bailed.

  3. Jo Murphey writes:

    Two actually. The first involved my husband. He became disabled after 2 heart attacks, a stroke, emphysema, cancer, and crumbling vertebrae in his back. He was denied disability. It took 4 years and a high priced attorney going to court to get his SSD.

    Story #2 is me. I had a stroke 2012 that left me paralyzed on the right side and aphasic. I was also denied SSD. Got a lawyer, went to court, and was ruled NOT disabled and denied benefits. I earned my living as an author and a minister. I can’t write more than a few sentences without errors in grammar and spelling because now I have dsylexia. I can’t preach a sermon.

  4. Glenn writes:

    I remember it being a struggle for my family when my mom had her stroke at 60. But we got through it, thankfully.

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