Archives for the ‘Brain Deep’ Category

Bullhorn

Evelyn / New York Public Library

Evelyn / New York Public Library


Harvard Medical School asked me to speak on the first day of their Neurology course. My hope is that the students take away: be encouraging to stroke patients! We can continue to get better for years! I have had run-ins with therapists and doctors who have not been encouraging. I’m busy proving them wrong.

Got stories to tell?

Fleas

Lips / Library of Congress

Lips / Library of Congress

Aphasia is an impairment of language and communication. June is National Aphasia Awareness Month.

I said odd words after my stroke. For example, I wanted to say “speech” and instead said “fleas.”

If the words coming out of your mouth are not what you intend, who’s talking?

Disabled Style

Disabled Style / Library of Congress

Disabled Style / Library of Congress

Students at the Parsons School of Design in NY have a course in fashion for the disabled. It is in conjunction with MIT’s Open Style Lab.

Praising smart design, baby. Me, I can’t stand stuck zippers. Any other ideas for improving fashion for the disabled?

Boogie

Boogie / Library of Congress

Boogie / Library of Congress

My two-year-old likes bluegrass, big band and David Bowie. Get down! I do some of my boring exercises during our dance parties.

Any other techniques to keep motivated?

 

Insurance Dance

Can Can / Library of Congress

Can Can / Library of Congress

My therapists want to see me, but they have to justify it to my health insurance. Which leads to the Insurance Dance. My hand can’t be just getting better, but it has to be more functional to get therapists reimbursed. We are currently working on ways my hand needs to be more functional around my son: Putting on stuck, annoying zippers, grabbing his hand when he decides to flee, etc.

Any crazy Insurance Dance stories?

Cosmo

Cosmopolitan Magazine

Cosmopolitan Magazine

I’m in Cosmo Magazine! The editor asked for a StrokeMama story. Here it is….

Perhaps you can relate?

Manners

Manners / Wellcome Images

Manners / Wellcome Images

An amusing etiquette story from the gym. I was walking down the gym stairs while a guy was going up next to me.

He said, “Do you need help?” I guess my gait was not perfection.

I said, “No.”

Totally fine so far. Then he said,

“Do you need help?” again.

Why again? There was no way he didn’t hear me the first time.

I said, “No!!!!!” He kind of jumped and left.

You can ask disabled people if they need help once.  Asking them more than that implies that they are completely incapable of running their own lives. In fact, I go up and down stairs dozens of times a day, since I live in a 2-story house.

Any other silly disability etiquette stories?

Other manners entries….

Bundled

Snow-Buntings / Library of Congress

Snow-Buntings / Library of Congress

18 inches of snow are expected in Boston today! 46 centimeters! We were going to make a snowman, but my son rejected that idea. We negotiated a snowpuppy. Woof!

Broom

Sweeping / Wellcome Images

Sweeping / Wellcome Images


My occupational therapist says certain of my back muscles are weak. She suggested that I pick up a broom and lift it up and down, for a very long time.

Up and down. Up and down. Highly boring. Thank you for your book recommendations. I listen to recordings on my phone. I just finished The City & the City, which is fab.

Even Better

Eyes / Library of Congress

Eyes / Library of Congress

My missing sight keeps getting better! I have vision loss because of my stroke. There is a narrow strip that I cannot see around 6 o’clock of my sight. Occasionally, I drop something small, like a coin, and wonder where it went.

Once a year I visit my eye doctor. He has me sit in a machine that measures my sight and periphery. The missing piece keeps getting smaller!

No one has a good explanation, since it has been awhile since my stroke. But I say, keep at it, everyone! Don’t give up!