Archives for the ‘Social’ Category

Radio

Radio / Library of Congress

Radio / Library of Congress

I’m on the radio! On the National Public Radio show “Here and Now.” They wanted me to talk about being a StrokeMama. Also what it’s like when your mind disappears. Listen here

Park

Park / Wellcome Images

Park / Wellcome Images

My son’s favorite nearby park is the Dragon Park. That is his name for it. It is hilly, sandy, not level and filled with park equipment that a StrokeMama can’t climb to rescue her 2-year-old when he gets stuck.

My son’s second favorite park he calls the Truck Park. It is flat, smaller and filled with toy vehicles.

He is often mad that we are not going to the Dragon Park. Truck Park compromise.

Other stroke compromises?

Music

Alabama / Library of Congress

Alabama / Library of Congress

My 2-year-old son enjoys his musical instruments – a ukulele, a harmonica, a triangle, a xylophone. (We have avoided buying a drum.) He likes belting out bluegrass tunes on his ukulele. Sometimes he hands it to me, whose right hand can play but not with his gusto. Then he looks annoyed.

Have you had moments when your kids notice your disability?

Bullhorn

Evelyn / New York Public Library

Evelyn / New York Public Library


Harvard Medical School asked me to speak on the first day of their Neurology course. My hope is that the students take away: be encouraging to stroke patients! We can continue to get better for years! I have had run-ins with therapists and doctors who have not been encouraging. I’m busy proving them wrong.

Got stories to tell?

Disabled Style

Disabled Style / Library of Congress

Disabled Style / Library of Congress

Students at the Parsons School of Design in NY have a course in fashion for the disabled. It is in conjunction with MIT’s Open Style Lab.

Praising smart design, baby. Me, I can’t stand stuck zippers. Any other ideas for improving fashion for the disabled?

Boogie

Boogie / Library of Congress

Boogie / Library of Congress

My two-year-old likes bluegrass, big band and David Bowie. Get down! I do some of my boring exercises during our dance parties.

Any other techniques to keep motivated?

 

Cosmo

Cosmopolitan Magazine

Cosmopolitan Magazine

I’m in Cosmo Magazine! The editor asked for a StrokeMama story. Here it is….

Perhaps you can relate?

Manners

Manners / Wellcome Images

Manners / Wellcome Images

An amusing etiquette story from the gym. I was walking down the gym stairs while a guy was going up next to me.

He said, “Do you need help?” I guess my gait was not perfection.

I said, “No.”

Totally fine so far. Then he said,

“Do you need help?” again.

Why again? There was no way he didn’t hear me the first time.

I said, “No!!!!!” He kind of jumped and left.

You can ask disabled people if they need help once.  Asking them more than that implies that they are completely incapable of running their own lives. In fact, I go up and down stairs dozens of times a day, since I live in a 2-story house.

Any other silly disability etiquette stories?

Other manners entries….

Bundled

Snow-Buntings / Library of Congress

Snow-Buntings / Library of Congress

18 inches of snow are expected in Boston today! 46 centimeters! We were going to make a snowman, but my son rejected that idea. We negotiated a snowpuppy. Woof!

Carousel

Carousel / Library of Congress

Carousel / Library of Congress

We spent the holidays with my parents in Los Angeles — warm and sunny, instead of Boston cold and snowy.

In LA we went to the carousel on the beach. My husband held up our son on a carousel horse. Getting my stroke self up and over another horse was not easy but was done. Off we went. My son was so taken with the merry-go-round that we had to repeat: “Again! Again!”