Exoskeleton

Machinery / Wellcome Images

Machinery / Wellcome Images

Last week I participated in a study that is trying to improve stroke victims’ walking. They used an exoskeleton around  my bad leg. Then I walked on a treadmill and it gave me electronic cues. Still in its infancy. I will go back.

Earlier studies…

Have you participated in scientific studies?

Time III

Baby in Tub / Wellcome Images

Baby in Tub / Wellcome Images

Balancing stroke demands with baby demands is tough. I try to be efficient: Nursing while doing hand exercises! Napping baby and leg exercises! I only partially succeed.

Any tips?

 

Do not

Flight / Library of Congress

Flight / Library of Congress


We took our son to see grandparents, his first airplane trip. Beforehand we were wondering whether babies need to have some sort of identification for air travel. My husband looked at a US government website. It said no ID necessary. Then it said: “passengers cannot leave babies in an infant carrier and attempt to put it through the X-ray machine.”

Noted.

Other stroke airport issues….

Toys

Teddy Bear / Wellcome Images

Teddy Bear / Wellcome Images

When I was in the hospital for my stroke, people gave me all kinds of stuffed animals:
http://mindpop.net/2011/10/16/gifts

The toys have been on my shelf ever since, reminders of my generous friends.

Now my son is playing with them. Recycle! A very happy reuse.

Up & Down

Graph / Library of Congress

Graph / Library of Congress

Strokes have fallen to 5th leading cause of death in the US, down from 4th. A good sign. However, strokes are increasing among young people. Disturbing.

Romance

Lovers / Library of Congress

Lovers / Library of Congress

Several people have written in asking advice on dating when you are disabled. I was very disabled at first after my stroke and dating was terribly hard. My advice is to date a lot, kind of like a job search. Online dating is your friend. All you need is one amazing person who thinks you are amazing too.

Other advice?

Date

Dinner / Wellcome Image

Dinner / Wellcome Image

My husband and I had our first night out since the baby. We dressed up for the occasion and ate curious food.

We tried not to talk about our son all the time. Didn’t work totally.

Car Race

Superspeedway / Library of Congress

Superspeedway / Library of Congress

My husband says that his diaper changing ability equals that of a pit stop in a car race. New wheels! New fuel! New diaper!

I, with only one good hand, am slower but getting faster.

The baby enjoys screaming through the pit stop. Clean diaper quiets him down.

Vroom!

Baby

Baby / Library of Congress

Baby / Library of Congress

Labor sucks. The result is great. Father and Mother and Baby did well. A healthy boy!

Class

Breastfeeding / Wellcoming Images

Breastfeeding / Wellcoming Images

Before the baby, my husband and I took a class at the hospital on birth and labor. Sounded awful. We took another class on breastfeeding. More positive. These classes showed us how completely clueless we were.

Similar stories?