Stroll

Mom and Stroller / Library of Congress

Mom and Stroller / Library of Congress

At last Boston has nice stroller weather. A productive use of mommy time: pushing baby in the stroller all around town while doing stroke exercises at the same time. Baby likes it.

Other efficiency advice?

Device

Hidden Hand / Library of Congress

Hidden Hand / Library of Congress

A couple of years ago I worked with my Occupational Therapist and a machine for my hand and finger function. She stuck electrodes on my hand and arm, set the device on and buzzzzzzz! it tried to get my brain and nerves to notice the electricity. Not too comfortable, but I had good results. However, it was a pain to set up.

This week my OT took out a new version, where everything is computerized and WiFied. It took two minutes to set up and buzzzzzzz! off we went. It still is not very comfortable, but at least it is easy to set up.

I will report any results. Anyone else have interesting devices?

Time IV

Dr. Pepper / Library of Congress

Dr. Pepper / Library of Congress

The first year after my stroke, I had so many tasks to work on that I didn’t think about time.

The second year was the hardest, because I knew what was wrong and I did think about  time. How long would everything take to get better? No one knew the answer.

It got better after that.

What was your attitude toward time?

Olympics

Olympics / Library of Congress

Olympics / Library of Congress

The latest polls in Boston show that most people don’t want to have the 2024 Olympic Summer Games here. Too much disruption for a small city. Plus, people don’t want to be socked with the bill when there are cost overruns. I agree. Not in my backyard!

Better location suggestions?

Exoskeleton

Machinery / Wellcome Images

Machinery / Wellcome Images

Last week I participated in a study that is trying to improve stroke victims’ walking. They used an exoskeleton around  my bad leg. Then I walked on a treadmill and it gave me electronic cues. Still in its infancy. I will go back.

Earlier studies…

Have you participated in scientific studies?

Time III

Baby in Tub / Wellcome Images

Baby in Tub / Wellcome Images

Balancing stroke demands with baby demands is tough. I try to be efficient: Nursing while doing hand exercises! Napping baby and leg exercises! I only partially succeed.

Any tips?

 

Do not

Flight / Library of Congress

Flight / Library of Congress


We took our son to see grandparents, his first airplane trip. Beforehand we were wondering whether babies need to have some sort of identification for air travel. My husband looked at a US government website. It said no ID necessary. Then it said: “passengers cannot leave babies in an infant carrier and attempt to put it through the X-ray machine.”

Noted.

Other stroke airport issues….

Toys

Teddy Bear / Wellcome Images

Teddy Bear / Wellcome Images

When I was in the hospital for my stroke, people gave me all kinds of stuffed animals:
http://mindpop.net/2011/10/16/gifts

The toys have been on my shelf ever since, reminders of my generous friends.

Now my son is playing with them. Recycle! A very happy reuse.

Up & Down

Graph / Library of Congress

Graph / Library of Congress

Strokes have fallen to 5th leading cause of death in the US, down from 4th. A good sign. However, strokes are increasing among young people. Disturbing.

Romance

Lovers / Library of Congress

Lovers / Library of Congress

Several people have written in asking advice on dating when you are disabled. I was very disabled at first after my stroke and dating was terribly hard. My advice is to date a lot, kind of like a job search. Online dating is your friend. All you need is one amazing person who thinks you are amazing too.

Other advice?